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Tick bites and Lyme disease

  1. #1
    Changes come butcher bergs's Avatar
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    Tick bites and Lyme disease


    I'm not sure how this became a "disease" since it is a bacterial infection but whatever, it will be called an infection today in this thread.


    People, if you have been bitten, save the tick to be tested and get yourself tested. I am speaking from the perspective of one who has been dealing with a Lyme infection for about 6 years now.....4 of them unbeknownst to be.

    What started as a random debilitating headache evolved, with time, to considerable joint pain in my legs, digestive tract issues due to the mountains of ibuprofen I was ingesting, many, many sleepless nights and overall discomfort with moving and also with not moving. Life has been quite unenjoyable and had become completely frustrating in many ways. For me, the constant pain is what really takes the cake as I am active and otherwise in perfect health. Add to this the fact that I was at the height of my racing experience and in no way was I feeling great in nearly every lap I ever turned anywhere. Trying to dismount a motorcycle after a race or trackday session was an act of hope and prayer.

    After not being able to cope with the basic acts of sitting at the dinner table or riding a motorcycle, I, at the encouragement of Mrs Butcher, explained to my Dr the symptoms that had developed over the course of a few years. Several blood tests later and in December 2013? BOOM! You guessed it.....Lyme.

    Come January and February of 2013, I enjoyed my first two rounds of doxcycline....and for those keep score at home, that equates to a total of 90 minutes a day of complete nausea and discomfort over the course of two months....and I was cured! Or so I thought.

    Just over a year now after my treatment and many of the symptoms have shown up again, more notably, the leg pain and tiredness and right now I could not appropriately convey the level of frustration I feel at this point in time as in my mind I am back to step 1....and to know that all I had to do years ago was to go to the Dr after I was bit and this would never have been be a topic of discussion. The worst part in all this is knowing exactly which bite it was since I can count on one hand how many times I've been bitten in my life.

    As I type this, I am not in fact back at step 1. I am at a point where I must purge the dead bacteria from my body.....another 2 month/ nauseating process, and the basis of my frustration in all this.


    In short I guess this is my PSA for anyone who wants to listen. Lyme is not something you want to mess with as there are so many symptoms that can take many months (or years) before it all comes together and you find yourself living in considerable discomfort almost always. With this firsthand experience I would ask that you please get checked if you have been bitten. It is the least you could do as the symptoms I describe might not be as forgiving for you.

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  2. #2
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    Re: Tick bites and Lyme disease

    Butcher, thanks for the fair warning to us all. I have read that New England is notorious for deer ticks / lyme and that most of the cases in the country are here.

    Here's wishing you a good recovery from this.

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  3. #3
    Lifer
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    Re: Tick bites and Lyme disease

    I got bit about 4 years ago. Within a month or 2 I was in the ICU at the hospital saying what I thought were my final goodbyes. I'm better now but I still have flair ups every now and then. My biggest issue comes from hyperacusis. Its super sensitive hearing, like superman hearing. I can hear the wind move and hear pressure differences its so sensitive. A whisper across the room sounds like yelling. I can't leave my room for a day every year or so. Its really bad. I can literally hear heart beats if your close enough.

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  4. #4
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    Re: Tick bites and Lyme disease

    Thank you xxxxxaaaaaaarrrrrrrrrrrrrra.

    I'm not worried about getting past it. I, more importantly, would not want this for anyone who is able to avoid it. These last few weeks have promoted my patience to a new level as I manage my group at work, build a business and continue on with family and home ownership life. The amount of effort to function in life increases 10 fold with the symptoms I experience......and that's the kicker! It's not the same experience for everyone.

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  5. #5
    Posting Freak timmyho414's Avatar
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    Re: Tick bites and Lyme disease

    Hey Burgs, I'm glad you're get back to normal life. edit, shit man, I miss read, step 1 meaning all over again. Let me know if you want any additional info.

    To add to Burgs, my wife is finally closing that chapter of our life that started in 2010 when she could no longer work.

    Short version...bedridden for months, wheel chair, walking cane, noise sensitivity, light sensitivity, complete body weakness(describes as feeling like she had a lead blanket on her), did not drive a car for almost 2 years. All the regular Doctors told us there was nothing wrong with her. She tried about 20 different antibiotics and ended up with portacath installed in her chest for about 2 years. She had Lyme and a bunch of confections that I would have to look up to spell properly.

    She started classes to become a nurse last semester and got an A in both classes. (she just ask me if I'd help her study tonight, damn it.)

    It can be a long road but is one that can be over come with the right treatment/Dr./support.

    If you have unexplained symptoms that can't be explain find a good Lyme Doc. I have way too much info about this so if anyone ever had questions please pm me.

    Also a good documentary is "Under Our Skin" it goes into some treatment and some politics of why Lyme is largely ignored by the CDC and main stream doctors.

    also on youtube is a video My storm. It's only one person's story but is a look into what one could go through.

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    Last edited by timmyho414; 06-22-15 at 01:27 PM.
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    go faster cdovego's Avatar
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    Re: Tick bites and Lyme disease

    My Dad got it, twice. Sucks - especially when you research where it originated.

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    Lifer PhilB's Avatar
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    Re: Tick bites and Lyme disease

    Also, do regular tick checks even if you haven't been where you think ticks are. If you have pets that go outside, check them, and keep an eye in the house as ticks can hitch a ride in on the pet, then hop off on your floor or furniture. Dogs can also get Lyme disease; you don't want your dog feeling like that either. Cats are apparently not susceptible to the disease, but they can still bring the infected ticks into the house.

    butcher bergs, FYI, the term "disease" is a general term for anything that can make you unwell. There are viral diseases, bacterial diseases, genetic diseases, toxic exposure diseases, and so on.

    PhilB

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    Re: Tick bites and Lyme disease

    Quote Originally Posted by timmyho414 View Post

    If you have unexplained symptoms that can't be explain find a good Lyme Doc. I have way too much info about this so if anyone ever had questions please pm me.
    I second seeing a Lyme specialist. I've been down this path several times, and the biggest lesson I've learned from it is to not visit my regular doctor when i have Lyme symptoms, I always call the specialist first.
    For what it's worth, I've been treated 5 times for Lyme over the past 10+ years and never once did I see or find a tick bite on me. The specialist told me once you have it, it can always flair up at some point and doesn't need a tick bite to start the infection again told me I have Chronic Lyme.
    I also never recall a treatment being less than 90 days, one time it was 6 months.

    Doxy really does screw up your system, but if you follow the instruction sheet the specialist gives you (assuming they gave you the information?) and take probiotics with it, it's not really that bad..at least it wasn't for me. Only exception being , the sunlight

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    Re: Tick bites and Lyme disease

    What I'm being informed with is that apparently there are binding properties of certain cholesterol-reducing medications which help evacuate the, shall I say, "contamination" so two months of detox and a reduction in cholesterol is what I am looking forward to.

    Had some blood tests done as recent as 3 weeks ago and my numbers (I don't recall which ones) that indicate Lyme in a human's system were back to normal. Based solely on those results, the infection itself has been sorted out..... I just need to take these cholesterol meds and poop out the dead spirochetes.

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    Re: Tick bites and Lyme disease

    So I had Lyme for over a year before I knew it. Doxy did not help and I went to so many doctors before I had a functional medicine dr actually figure out all my random symptoms stemmed from not totally ridding the Lyme disease. After two years of feeling like dog shit- the cholesterol meds did the trick. Symptom free for over a year. I thought I was never going to get over it- Lyme really is a nasty nasty thing.

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    Re: Tick bites and Lyme disease

    I think everyone here has heard some of my Lyme exploits at one time or another
    I am a land surveyor/wetland scientist/land use consultant. The highest Lyme risk profession there is. I have been affected by Lyme of and on for the past 15 years, first 4 misdiagnosed, fatigue, seizures, dizziness, memory loss, general cognitive confusion

    I was once under the treatment of a Lyme literate doctor, but due to threats of charges of quackery, he has since moved on from the Lyme specialty. Now, some states have legal protection for Lyme specialists from the strong arm of CDC, AMA and general government control over medical practice. Right now, I am on the search for a Lyme Specialist, ideal would be one that is in my insurance network

    in total over the past 15 years, I have taken Doxycycline for over 4 years. My Lyme Specialist though had me on a pair of alternative antibiotics, one was a Malaria drug, the other I don't recall the name, but I was not sun sensitive like with Doxycycline and the results wear better

    As R7 elluded, probiotic and other supplement therapy while on the antibiotic, can drastically reduce some to the antibiotic side effects

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  12. #12
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    Re: Tick bites and Lyme disease

    Unreal reading about the cholesterol meds.

    Just picked up my month supply of orange flavored (Haha! Bullshit!) powder product.

    Always a skeptic but we'll see....

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    Re: Tick bites and Lyme disease

    There are now about 6 tick born infections in the Northeast

    At least one mimics Lymes but foes NOT show positive for the Lyme's test

    Shower within 2 hours before the thing can burrow deep enough to infect you

    Thanks Rachel Carson

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    Re: Tick bites and Lyme disease

    Quote Originally Posted by butcher bergs View Post
    What I'm being informed with is that apparently there are binding properties of certain cholesterol-reducing medications which help evacuate the, shall I say, "contamination" so two months of detox and a reduction in cholesterol is what I am looking forward to.

    Had some blood tests done as recent as 3 weeks ago and my numbers (I don't recall which ones) that indicate Lyme in a human's system were back to normal. Based solely on those results, the infection itself has been sorted out..... I just need to take these cholesterol meds and poop out the dead spirochetes.
    Lyme blood tests are typically only done to keep the FDA (or whatever the hell it's called) happy...all of them are less than 50% reliable. A good Lyme specialist will diagnose you with a question/answer sheet and treat you accordingly.

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    Re: Tick bites and Lyme disease

    Quote Originally Posted by R7 View Post
    Lyme blood tests are typically only done to keep the FDA (or whatever the hell it's called) happy...all of them are less than 50% reliable. A good Lyme specialist will diagnose you with a question/answer sheet and treat you accordingly.
    I'm being treated for multiple types of exposure at the moment and filling vials is part of the motions I go thru. I do fill out the symptoms sheet on every visit and with that, have complete trust in the direction my Dr takes me. She knows I'm a stickler for measurable results and numbers tell the story. The affected blood levels involve the C3a and C4a values which become elevated during infection.

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    Re: Tick bites and Lyme disease

    I don't follow lyme significantly - especially chronic lyme, but keep an eye on it considering how often I'm outside and exposed to ticks. I saw several articles about chronic lyme on the MD-authored medical skeptic blog that many of you might find interesting, or frustrating: https://www.sciencebasedmedicine.org...nd-contrasted/ They have several entries about it, written by several MD's, and the overarching theme seems to be that people may have symptoms, but it isn't lyme, and that the testing used is questionable and driven by a need for answers more than the scientific process.

    The comments to these articles, while less credible, are often littered with discussion by alleged MD's too.

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    Last edited by aldend123; 06-23-15 at 11:02 AM.
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    Re: Tick bites and Lyme disease

    Day 4 of detox.




    aldend123: I'd have to say that article is open to a whole lot of discussion. The writer definitely covers his ass well.

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    Lifer Garandman's Avatar
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by butcher bergs View Post
    People, if you have been bitten, save the tick to be tested and get yourself tested.
    Sorry to hear about your rough road.

    Just put out to my kids and friends to save the body of any tick that bites them. Very helpful. We know people who live in Boston proper who have contracted Lyme. Supposedly this may be a big year for ticks.

    Now let's go shoot some deer....

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    Last edited by Garandman; 06-28-15 at 08:02 AM.
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    Posting Freak timmyho414's Avatar
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by aldend123 View Post
    I saw several articles about chronic lyme on the MD-authored medical skeptic blog that many of you might find interesting, or frustrating: https://www.sciencebasedmedicine.org...nd-contrasted/
    I could only make it through a few paragraphs of that. Those people love to stick to the we have no idea why you're sick but it's NOT Lyme, this book says so. 'It must be in your head' or 'you're getting older'...bite me./ directed at the author not aldend123

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    Last edited by timmyho414; 06-30-15 at 06:28 PM.
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by butcher bergs View Post


    People, if you have been bitten, save the tick to be tested and get yourself tested.
    Okay. If I pulled out a tick today what would be the next step? Where to go , what to do, how soon?

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  21. #21
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    Re: Tick bites and Lyme disease

    Save the tick, as mentioned, and give your Dr a call tomorrow.

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  22. #22
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by Rambunctous View Post
    Okay. If I pulled out a tick today what would be the next step? Where to go , what to do, how soon?
    Torture the little fucker.

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    Re: Tick bites and Lyme disease

    Quote Originally Posted by timmyho414 View Post
    I could only make it through a few paragraphs of that. Those people love to stick to the we have no idea why you're sick but it's NOT Lyme, this book says so. 'It must be in your head' or 'you're getting older'...bit me.
    I don't think that's quite what they're saying. I think what they're saying is that that after the initial treatment of antibiotics, the bacteria is dead, so the symptoms have to be caused by something else (i.e. long term neural damage). If that's the case, then giving all those megadoses of antibiotics is doing more harm than good.

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  24. #24
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    Re: Tick bites and Lyme disease

    Optometrist suggested Lyme test for friends failing eye sight.
    Went to primary doc.
    Test positive, script taken, eye sight restored.

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  25. #25
    Angry Gumball RandyO's Avatar
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by joeswamp View Post
    I don't think that's quite what they're saying. I think what they're saying is that that after the initial treatment of antibiotics, the bacteria is dead, so the symptoms have to be caused by something else (i.e. long term neural damage). If that's the case, then giving all those megadoses of antibiotics is doing more harm than good.
    that is not how antibiotics for Lyme work, the antibiotic does not kill the bacteria, it just inhibits it's ability to reproduce, it is necessary to have the bacteria die of "old age" so to speak and keep it from reproducing thru its entire life cycle, short term antibiotic only works when the infection is caught immediately while the tick is still passing the germ on

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