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Tick bites and Lyme disease

  1. #76
    Don't bother me! R7's Avatar
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    Re: Tick bites and Lyme disease


    Quote Originally Posted by butcher bergs View Post
    My thought is to ensure your Dr understands what post-Lyme is and what treatments are being practiced. As can be read in this thread, almost all of my symptoms started to come back roughly a year later. More blood tests showed that I was Lyme free however, as I came to know, the human body does not have a way to eliminate the dead spirochete and further treatment is necessary.
    I go see a lyme specialist, I'm at the point with my primary care doctor that I won't even bother to call him if I feel my symptoms are coming back. Blood tests are less than 50% accurate when testing for lyme, unfortunately.

    I'm guilty of my own ignorance on this one. About 2 months ago, I pulled a tick off my arm. I had taken a walk in the woods about 4pm, must have picked one up, had dinner and showered about 6:30..so less than 2.5 hours max of contact. The "experts" say it takes 24 hours to transmit, so I thought I was good. My specialist says that's bullshit, as soon as the tick breaks the skin, the bacteria can transmit...lesson learned

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  2. #77
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    Re: Tick bites and Lyme disease

    With regards to the blood tests, my Dr was monitoring the C3a and C3b levels specifically.....and yes, complete bullshit on the 24hr thing.

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  3. #78
    Angry Gumball RandyO's Avatar
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by R7 View Post
    I go see a lyme specialist
    I am in search of a new ILADS doctor that is taking on new patients and is closer than Albany, NY and preferably in my healthcare network

    the Lyme doctor I was seeing gave up the Lyme specialty due to threats from CDC and AMA

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  4. #79
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by RandyO View Post
    I am in search of a new ILADS doctor that is taking on new patients and is closer than Albany, NY and preferably in my healthcare network

    the Lyme doctor I was seeing gave up the Lyme specialty due to threats from CDC and AMA
    Our Story

    I am very thankful for all the help Dr. Greenspan has giving my wife.

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  5. #80
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    Re: Tick bites and Lyme disease

    Randy - my Dr is in Atkinson. If that's close enough for you I'd be happy to forward her contact info.

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  6. #81
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    Re: Tick bites and Lyme disease

    so.... bringing this thread up.. as googling symptoms isnt enough fodder for me.
    Headed to the GP today as for the past 2 weeks i've had achy joints( flu like malaise etc) no other symptoms other than a headache that is lingering the last 2 days( but no cafeinne the last 2 days might be the cause of it)
    I've been on Advil/ Alleve the last 2 weeks and it helps a lot but not 100%, I spend time in the woods no ticks i've noticed this year maybe 1 last year if that..... no rash or bullseye.

    Doc is doing blood work now and I did a nasal / brain swab for Covid this morning. So I'll see in a couple of days.
    If the test come sback negative, NESR suggests that I just find a specialist?? because honestly I dont know what this could be....

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    hmmmm......

  7. #82
    Lifer
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by black View Post
    so.... bringing this thread up.. as googling symptoms isnt enough fodder for me.
    Headed to the GP today as for the past 2 weeks i've had achy joints( flu like malaise etc) no other symptoms other than a headache that is lingering the last 2 days( but no cafeinne the last 2 days might be the cause of it)
    I've been on Advil/ Alleve the last 2 weeks and it helps a lot but not 100%, I spend time in the woods no ticks i've noticed this year maybe 1 last year if that..... no rash or bullseye.

    Doc is doing blood work now and I did a nasal / brain swab for Covid this morning. So I'll see in a couple of days.
    If the test come sback negative, NESR suggests that I just find a specialist?? because honestly I dont know what this could be....
    If you regularly consume caffeine and abstained recently, it can cause a surprisingly powerful headache and a couple days of sluggishness. That doesn't really explain the joints though.

    I'd focus on your symptoms rather than what you think it might be. And I'd look for an MD that's going to have an open mind. Meaning they're open to it being many things, including lyme, but aren't going to pidgeon hole you in to lyme. I'm pretty sure the symptoms you have could fall under several problems varying from the common cold to AIDS. In other words, you're getting ahead of yourself.

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  8. #83
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    Re: Tick bites and Lyme disease

    For me, joint pain was only 1 of several symptoms I've had with Lyme. If it's joint pain and a headache for me, I wouldn't go see my Lyme doctor. Every time my Lyme has kicked up, I've had mild joint pain, tingly fingers, fatigue, and chills.

    The blood test is less than 50% accurate, my Lyme doctor always diagnosed me with a question sheet. Joint pain alone (headaches wasn't on the list) would give me a negative diagnosis.

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  9. #84
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    Re: Tick bites and Lyme disease

    the several times I had Lyme, I never had the typical joint/arthritic type symptoms, commonly reported, I had severe fatigue, sleeping 16+ hours a day at times, confused, and memory issues, mostly cognitive, for me, minor flu like symptoms, mostly sleeping, but somehow I still managed to log 35k miles annually on my SV650, I went places I don't remember going, and did things I don't remember doing

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  10. #85
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    Re: Tick bites and Lyme disease

    Thanks for input guys..... Yes i'm jumping the gun on this one. I know it.... but more info helps.
    frustrating to be achy/ tired for 2 weeks straight and not being/ wanting to get things done......

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    hmmmm......

  11. #86
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    Re: Tick bites and Lyme disease

    Great tip. Found a tick me a few weeks ago near my belt line. Should have saved it.

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  12. #87
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    Re: Tick bites and Lyme disease

    I knew something was wrong with you when Britten was sitting on the counter being adorable but I thought it was just new kid family job stuff. Now it all makes sense, I'm not a God fearing man but I'll keep you in my hopes and your family in well wishes old friend.

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    Re: Tick bites and Lyme disease

    Quote Originally Posted by R7 View Post
    For me, joint pain was only 1 of several symptoms I've had with Lyme. If it's joint pain and a headache for me, I wouldn't go see my Lyme doctor. Every time my Lyme has kicked up, I've had mild joint pain, tingly fingers, fatigue, and chills.

    The blood test is less than 50% accurate, my Lyme doctor always diagnosed me with a question sheet. Joint pain alone (headaches wasn't on the list) would give me a negative diagnosis.
    Where do you go? I have lots of joint pain, but not much of the other symptoms described. More tired than usual, but not ridiculous. I get lots of ticks on me and my dog was just diagnosed with Lyme today. She got the shots, but thy apparently work as well as the flu shot.

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  14. #89
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by dhuze View Post
    Where do you go? I have lots of joint pain, but not much of the other symptoms described. More tired than usual, but not ridiculous. I get lots of ticks on me and my dog was just diagnosed with Lyme today. She got the shots, but thy apparently work as well as the flu shot.
    Dr James Gloore at North Kingstown Medical walk-in. I don’t know if he is accepting new Lyme patients, but worth a shot.

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  15. #90
    Lifer
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by RandyO View Post
    the several times I had Lyme, I never had the typical joint/arthritic type symptoms, commonly reported, I had severe fatigue, sleeping 16+ hours a day at times, confused, and memory issues, mostly cognitive, for me, minor flu like symptoms, mostly sleeping, but somehow I still managed to log 35k miles annually on my SV650, I went places I don't remember going, and did things I don't remember doing
    Did you ever have treatment for the memory issues or did you just carry on?

    My symptoms were unbreaking high fever, joint pains, fatigue, head aches and hypercushion plus some other stuff that i have forgotten. It hit me hard too. I was cycling a 100 mile trip like i did every week and about 3 miles from my house i just couldnt pedal anymore. I had to call my wife to get me. 2 Days later i am in the hospital.
    Lasting effects have been memory loss and fatigue. My memory is shattered. Its mostly short term loss. I can remember stuff from decades ago like it was yesterday but i struggle to remember where i parked my car or if i ate breakfast this morning. Day to day stuff never comes truly, it all gets muddled up. Like i know i had cereal twice last week because i have the empty box in the trash but i could never tell you the days i had it. Nor could i tell you when i bought the cereal, just that it was in the last few weeks. I might be able to tell you were i bought it though.

    I ended up in the ICU with my problems. They tested me and diagnosed me fairly quickly to get me going on the right treatment path. They thought i was going to die for a while. I was sending out goodbyes to people and family was called. I was always awake but not really there.

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  16. #91
    Angry Gumball RandyO's Avatar
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    Re: Tick bites and Lyme disease

    Quote Originally Posted by boosten lebaron View Post
    Did you ever have treatment for the memory issues or did you just carry on?

    My symptoms were unbreaking high fever, joint pains, fatigue, head aches and hypercushion plus some other stuff that i have forgotten. It hit me hard too. I was cycling a 100 mile trip like i did every week and about 3 miles from my house i just couldnt pedal anymore. I had to call my wife to get me. 2 Days later i am in the hospital.
    Lasting effects have been memory loss and fatigue. My memory is shattered. Its mostly short term loss. I can remember stuff from decades ago like it was yesterday but i struggle to remember where i parked my car or if i ate breakfast this morning. Day to day stuff never comes truly, it all gets muddled up. Like i know i had cereal twice last week because i have the empty box in the trash but i could never tell you the days i had it. Nor could i tell you when i bought the cereal, just that it was in the last few weeks. I might be able to tell you were i bought it though.

    I ended up in the ICU with my problems. They tested me and diagnosed me fairly quickly to get me going on the right treatment path. They thought i was going to die for a while. I was sending out goodbyes to people and family was called. I was always awake but not really there.
    my Doc had me taking a lot of supplements, + doxy in the beginning, but switched me to hydrocloroquinine, mostly cause I work outside in the sun, there are events in the 1999-2007 time frame, that I have no real memory of, almost like trying to remember the 60's

    I also think my seizure disorder, came about due to Lyme, I never had them before, and now, I am taking seizure meds, for the rest of my life, I'm only back to driving about a year, there was 2-3 years, I needed a chauffeur

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    RandyO
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